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Frequently Asked Questions

Participation
  • We will take great care to protect your information. Here are a few of the steps we will take:

    • Information we have about you will be stored on protected computers. We will limit and keep track of who sees the information.
    • We will remove your name and other direct identifiers (like your date of birth) from your information and replace them with a code. There will be a master list linking the codes to names, but we will keep it separate and secure.
    • In order to work with your health information, researchers must promise not to try to find out who you are.
    • We will tell you if there is a data breach.
    • The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight legal demands (such as a court order) to give out information that could identify you.
Health Information
  • Your privacy is very important and we will take great care to protect it if you join. Here are a few of the steps we will take:

    • Information we collect will be stored on protected computers. We will limit and keep track of who sees the information.
    • We will remove your name and other direct identifiers (like your date of birth) from your information and replace them with a code. There will be a master list linking the codes to names, but we will keep it separate and secure.
    • In order to work with your health information, researchers must promise not to try to find out who you are.
    • We will tell you if there is a data breach.
    • The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight legal demands (such as a court order) to give out information that could identify you.

    Still, loss of privacy is a risk of taking part in All of Us. Even without your name, there is a chance someone could figure out who you are. Your information could be misused. We believe the chance of this is very small, but it is not zero.

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Questions?

Check out our frequently asked questions, or contact our team.

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Questions?

Check out our frequently asked questions, or contact our team.

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We’re open from 7 a.m. to 10 p.m. Eastern, excluding public holidays.