Frequently Asked Questions
We take your privacy seriously. We will take great care to protect it. If you receive follow-up care because of the program, your insurance may be billed.
If there is a data breach, insurance companies could get access to the information we have about you. Even without your name, there is a chance someone could figure out who you are. Your information could be misused. We believe the chance of this is very small, but it is not zero.
Your privacy is very important, and we will take great care to protect it if you join. Here are a few of the steps we will take:
- Information we collect will be stored on protected computers. We will limit and keep track of who sees the information.
- We will remove your name and other direct identifiers (like your Social Security number) from your information and replace them with a code. There is a master list linking codes to names. This list is kept secure, and very few people have access to it.
- To work with your health information, researchers must promise not to try to find out who you are.
- We will tell you if there is a data breach.
- The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight legal demands (such as a court order) to give out information that could identify you.
Still, loss of privacy is a risk of taking part in the All of Us Research Program. Even without your name, there is a chance someone could figure out who you are. Your information could be misused. We believe the chance of this is very small, but it is not zero.
- Will you ever give out my name or other information that identifies me to anyone outside of the All of Us Research Program?
If you join the All of Us Research Program, there are a few times when we might need to give out your name or other information about you. For example:
We may give out information about you to protect your health or the health of others, including:
- If we learn or suspect that you are being abused
- If we learn or suspect that you are abusing, are neglecting, or have abandoned someone who depends on you for care, like a child or dependent adult
- If we learn that you plan to harm someone
- If we learn that you have certain diseases that could be transmitted to others
We will give out information to meet U.S. research laws and regulations. One requirement of doing research is that we let officials from the U.S. government review our work. This is to make sure we are doing things the right way.
Check out our frequently asked questions, or contact our team.
* Your privacy is important to us. To keep it secure, please do not include any personal information (such as your address, social security number, or health details) in your email or chat messages. Thank you.
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