If you decide to join the All of Us Research Program, the first step is to create an account. You can do this through our registration page or at one of our participation centers. You’ll need to provide your name and email address or mobile phone number to enroll.
Once you’ve created your account, you will be asked to give your consent. This includes reviewing a series of videos, which will provide more detailed information about the program. These describe all the types of information you may be asked to give. Once you feel comfortable that you know what to expect, and if you are ready to give your consent, you’ll electronically sign the consent form. You can do all of this from your computer, tablet, or smartphone, or at a partner center.
As part of the consent process, we will ask you to agree to share your electronic health records (EHR). Sharing your EHR is your choice. If you decide not to share your EHR, you can still participate by answering health surveys. But you will not be asked to take part in some other aspects of the program.
Your DNA results could include information about your ancestry (which is where your family comes from), your genetic traits, whether you have an increased risk for getting certain health conditions, and how your body might react to certain medications. You may want to know this information or you may not.
You will be asked to answer several health surveys. These are available on the Participant Portal. You can answer the surveys at your convenience using your computer, tablet, or smartphone. Your name will never be on these. Your answers will help build the All of Us database. Approved researchers can access this database to conduct their studies.
You may be invited to visit one of our partner centers to have your physical measurements taken (height, weight, blood pressure, etc.) and provide biosamples (blood and urine). You will be able to choose the partner location most convenient for you.
We want to make sure we get information from all types of people, especially those who have been underrepresented in research.
Not everyone will be asked to give blood and urine samples. Scheduling appointments for a large program takes time. It may take many weeks or months for all of the appointments to take place across the country.
We will ask you to update your health and lifestyle information from time to time. We hope you'll be part of All of Us for many years.
Throughout the program, other researchers may conduct other studies, including clinical trials. These trials may study certain health problems or medications. You may be invited to take part in some of these. You can always join this research program and say no to other research studies.
You will have access to the data you give to the program. This may be interesting to you and help you learn about your health. We will tell you about the research studies that use All of Us data.