All of Us uses cutting-edge security technology to help keep participant data safe.
The data that participants give to the All of Us Research Program is personal. We know that. And we respect that. Which is why we are serious about privacy and security.
The data that participants will provide is varied. It may include data about lifestyle, environment, and biological makeup, including genes. Researchers will use this to help understand disease and make prevention strategies and treatments as unique as we are.
The All of Us Research Program is using the most rigorous security models so that participants can trust that their data is protected. It will also ensure data is used ethically and responsibly to improve health for generations to come.
These are some of the specific steps we are taking to protect participant information:
- We require All of Us Research Program partner organizations to show that they can meet strict data security standards before they may collect, transfer, or store information from participants.
- We encrypt all participant data, and keep participants’ names, addresses, and other identifying information separate from their health information.
- We require researchers seeking access to All of Us Research Program data to first register with the program, take our ethics training, and agree to a code of conduct for responsible data use.
- We make data available on a secure platform—the All of Us research portal—and track the activity of all researchers who use it.
- We enlist independent reviewers to check our plans and test our systems on an ongoing basis to make sure we have effective security controls in place, responsive to emerging threats.
How Your Data Will Be Used
The data you contribute will inform thousands of medical studies. We hope it will pave the way toward a future of customized care.