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Program Overview

The mission of the All of Us Research Program is simple. We want to speed up health research and medical breakthroughs. To do this, we’re asking one million people to lead the way to provide the types of information that can help us create individualized prevention, treatment, and care for all of us.

What Does This Mean?
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We are creating a research community of one million people who will share their unique health data. This will include answering survey questions about health, environment, and lifestyle. Some participants may also be asked to have their physical measurements taken, and/or give blood and urine samples. We’ll ask you to answer more questions from time to time. It’s up to you to decide how much data you share.

The health data we gather from our community of one million people will be added to a database. Researchers can then access this data to further understand how different factors, like environment, lifestyle, and genes, can impact health. This may help develop new medical treatments that are unique to individuals, and enable a future of precision medicine for all of us.

We take your privacy very seriously. When you provide personal information, your name and things that easily identify you will be removed, and replaced with a unique code. We’ll take care to keep your information secure.

What is Precision Medicine?

Precision medicine is health care that is based on each individual. It takes into account factors like where you live, what you do, and your family health history. To make health care better in the future, we need to learn more about the differences that make each of us unique. Participants can help by sharing their health information for research.

Why Now?

The time is right for the All of Us Research Program because:

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We have greater understanding of human genes.

 
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More people are engaged in their health, and can track and share their data — like steps and sleep.

 
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We have technologies that can collect and analyze huge amounts of data.

 
What’s Possible with the All of Us Research Program?

There has never been a health data resource as diverse or as large as the All of Us Research Program. Researchers can use this data to better understand health and disease.

This could:

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Identify a person’s risk for a certain disease.

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Figure out which treatments work for which people.

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Join people with the right clinical studies.

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Test how mobile devices, like cell phones and tablets, can encourage people to take better care of their health.

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    The All of Us Research Program will change the way we do research. Participants will be partners in research, not subjects, and will have access to a wide range of study results. What we’re doing with the All of Us Research Program is intersecting with other fundamental changes in medicine and research to empower Americans to live healthier lives.

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    - Dr. Francis S. Collins

    Director, National Institutes of Health

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    There are significant parts of our society that don’t respond equally well to medications that are developed. I’d like to make sure that we equally benefit from the recent advances in biomedical and clinical research.

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    - Dr. Esteban G. Burchard

    Professor of Bioengineering & Therapeutic Sciences,

    University of California San Francisco

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    I had a series of gastrointestinal bleeds for which they could find absolutely no source. That put me in the position of most of Americans where 75% of the health care we receive is not evidence based. To have my doctors say to me, “We really just don’t know what’s going to work for you or why this is happening to you” was very disconcerting.

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    - Jamie Roberts, MPH, MA

    Senior Clinical Project Manager, CTTI

More About the Program’s Mission

Partners, Not Subjects

People are becoming more and more engaged in their health. The All of Us Research Program will pioneer a new model of research where participants are partners in the process. This means that participants will be invited to give input about the program through surveys. They will see their own information collected by the research program. They could even conduct their own research as “citizen scientists.”

A Resource For All of Us

The All of Us Research Program is not one single health study. It’s a database researchers can use to run thousands of health studies. This may lead to many different medical breakthroughs.

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VIEW / PRINT THE ALL OF US FACT SHEET

Open Research, Safe Research

The data we collect can be used by any researcher in the U.S. and around the world. There are strict rules they must follow to use the data. We want to inspire many types of researchers to use their creative thinking to find new discoveries.

Privacy First, Privacy Always

The All of Us Research Program is committed to protecting your privacy. We have partnered with leading experts in privacy, bioethics, civil liberties, and technology. All research data will be de-identified. This means names, addresses, and other identifying information will be removed.