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NEW YORK CONSORTIUM: WHO WE ARE

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Frequently Asked Questions

  • New York City Consortium is a Partner of the All of Us Research Program serving the five boroughs of New York City. All of Us is an exciting new initiative from the National Institutes of Health (NIH). The mission is simple. To speed up health research and medical breakthroughs.

    The All of Us Research Program is asking one million people to come together to create the largest health database ever. Researchers can use this data to better understand disease. This may create a healthier future for generations to come.

  • If you join, you will be contributing to research that may improve health for everyone. Our goal is to understand what makes people sick and to develop new treatments. Here are some examples of what researchers might be able to discover from their research:

    • Better tests to see if people are sick or are at risk of getting sick.
    • Better mobile apps to encourage healthy habits.
    • Better medicine or information about how much of a medicine is right for each person as an individual.

    Also, you will be able to see your information, which might be interesting to you. You may also learn about your health. If you choose, you will be able to share your information with your doctor.

  • New York City Consortium Research Program will begin enrollment in 2017. There are three ways to join:

    Because New York City Consortium is a research program, you will be asked to complete an informed consent process. This process tells more about what is involved, and the risks and benefits of joining.

  • The consent form and health surveys may take about 35-45 minutes to complete. You can complete the consent and surveys online before you come in for a visit – or when you come in for a visit at one of our enrollment centers where we will ask you to provide physical measurements and biospecimens (blood and urine), which will take an additional 20-30 minutes.

  • Yes. You can talk to a New York City Consortium Research Program representative about your participation in the program at one of our enrollment centers. You can also call the New York City Consortium Support Center to discuss your participation at 212-305-9927.

  • Our plan is that New York City Consortium Research Program will last at least 10 years. You will receive updates for us and from the national All of Us Research Program. We hope you will stay involved over time. If you do, researchers may better understand what causes changes in our health and what we can do about it.

  • If you decide to join New York City Consortium Research Program, we will ask you to share different kinds of information. We will ask you basic information like your name and where you live. We will ask you questions about your health, family, home, and work. If you have an electronic health record, we will ask for access. We will ask you to go to a local New York City Consortium enrollment center. At this appointment we will measure your weight, height, hips, and waist, as well as your blood pressure and heart rate. We will ask you to give samples, like blood or urine, at the appointment.

    We may contact you to answer additional surveys from time to time. You can choose to answer the surveys or not. We may also contact you periodically to ensure that your contact information is up-to-date in our system.

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