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Make a difference from a safe distance

The more information researchers have, the faster they can discover new treatments and cures for diseases like COVID-19. You have the power to drive research for various health conditions—even from home.

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What is the All of Us Research Program?

All of Us is a research program from the National Institutes of Health (NIH).

At the moment, health care is often one-size-fits-all. But imagine a future where your health care is tailored to you. We want to make that future possible. How? By creating a resource that allows researchers to conduct thousands of studies on health and disease.

Participants share data
Participants share data

Participants may answer health surveys, donate DNA samples and share their electronic health records.

Researchers study the data
Researchers study the data

By looking for patterns, researchers will learn more about what affects people’s health.

Participants get information
Participants get information

Participants will get information back about the data they provide, which may help them learn more about their health.

Researchers share discoveries
Researchers share discoveries

Research may help in many ways. It may help find the best ways for people to stay healthy. It may also help create better tests and find the treatments that will work best for different people.

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Who can join?

AoU Map

Be part of the largest health research project ever

All eligible adults over 18, living anywhere in the United States can join.

All of Us is asking lots of people to join the program. Participants are from different races, ethnicities, age groups, and regions of the country. With health information donated by people of all backgrounds, the All of Us Research Program aims to understand more about why people get sick or stay healthy.

Over 350,000+ have already joined. Our goal is one million or more.

Without you, it won’t be All of Us.

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Frequently asked questions

If you join, you will be contributing to research that may improve health for everyone. Our goal is to help researchers understand why people get sick or stay healthy. Here are some examples of what researchers might be able to discover from their research:

  • Better tests to see if people are sick or are at risk of getting sick
  • Better mobile apps to encourage healthy habits
  • Better medicine or information about how much of a medicine is right for each person

Also, you will be able to see your All of Us Research Program information, which might be interesting to you. You may also learn about your health. If you choose, you will be able to share your All of Us information with your health care provider.

Your privacy is very important, and we will take great care to protect it if you join. Here are a few of the steps we will take:

  • Information we collect will be stored on protected computers. We will limit and keep track of who sees the information.
  • We will remove your name and other direct identifiers (like your Social Security number) from your information and replace them with a code. There is a master list linking codes to names. This list is kept secure, and very few people have access to it.
  • To work with your health information, researchers must promise not to try to find out who you are.
  • We will tell you if there is a data breach.
  • The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight legal demands (such as a court order) to give out information that could identify you.

Still, loss of privacy is a risk of taking part in the All of Us Research Program. Even without your name, there is a chance someone could figure out who you are. Your information could be misused. We believe the chance of this is very small, but it is not zero.

Joining the All of Us Research Program is free and won’t cost you anything more than a little bit of your time. All activities are free. There are no costs to you or your insurance.

If you use the All of Us Research Program app on your smartphone, it will count against your data on your phone plan. You can set the app to use only Wi-Fi to avoid this.

No. All of Us is a research program. It is not medical care. You can keep your current health care team even if you decide to join the All of Us Research Program.

Once you provide your blood or saliva samples, it might take a few months or even a few years for All of Us to check your DNA. We plan to start by processing a portion of participant DNA samples. We will then process more and more DNA samples over time. When we are ready, we will ask you to tell us if you want your DNA results.

You will get your DNA results over time on an individualized timeline. The timing will depend on when All of Us can analyze your DNA. This will also depend on when you submit your blood or saliva samples to All of Us. Since we plan to check your DNA in a variety of ways, you could possibly get some DNA results fairly quickly but then wait years to get other DNA results. If we discover new ways to analyze DNA, we might look at your DNA again in the future and have updated results for you.

Please check your All of Us account regularly for updates.

A clinical trial is a type of research study. Clinical trials look at specific medical treatments to see if they are safe and effective for humans. All of Us is a research program. It is not a clinical trial.

If you join the All of Us Research Program, we will ask you if you want to hear about chances to take part in other research. If you say yes, we will let you know about other research studies. You can then decide if you want to join those studies. You can say yes or no and still be part of the All of Us Research Program.

We will offer regular updates about the All of Us Research Program. You can choose if you would like to get these updates. If you choose to get the updates, you can tell us how often and in what way you would like for us to contact you.

We may contact you to answer surveys from time to time. You can choose to answer the surveys or not. We may contact you to schedule an appointment to provide samples and have measurements.

The main risk of taking part in the All of Us Research Program is to your privacy. If there is a data breach, someone could get access to the information we have about you. Even without your name, there is a chance someone could figure out who you are. Your information could be misused. We believe the chance of this is very small, but it is not zero.

We will gather information from you through the All of Us Research Program app or website. You may be asked to wear a health tracker. There is a risk to your privacy whenever you use an app, website, or health tracker. In general, there is no additional risk to your privacy if you use any of these technologies as part of the All of Us Research Program. However, the All of Us Research Program will be collecting many different types of information from you. There may be additional risk to your privacy in case of a data breach, because of the amount of information that the database contains.

Although we will not give researchers your name, we will give them basic facts such as your race, ethnic group, and sex. This information helps researchers learn whether things that affect health are the same in different groups of people. These findings could one day help people of the same race, ethnic group, or sex as you. However, others could misuse the information to support harmful ideas about groups.

If you give a blood sample, the most common risks are brief pain and bruising. Some people may become dizzy or feel faint. There is also a small risk of infection.

Taking part in the All of Us Research Program may have risks that we don’t know about yet. We will tell you if we learn anything that might change your decision to take part.

No. We may ask for your Social Security number to help match your information to other information, but you do not have to give it to us.

Researchers will use the data collected by the All of Us Research Program to study many different diseases and conditions. It is up to each researcher to decide what they study.

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