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Program Overview

The mission of the All of Us Research Program is simple. We want to speed up health research and medical breakthroughs. To do this, we’re asking one million people to lead the way to provide the types of information that can help us create individualized prevention, treatment, and care for all of us.

What Does This Mean?

We are creating a research community of one million people who will share their unique health data. This will include answering survey questions and sharing electronic health records (EHR). Some participants may also be asked to provide blood or urine samples. We’ll ask you to answer more questions from time to time. It’s up to you to decide how much information you want to share.

The health data we gather from participants will be stored in a database. Approved researchers can access this data to explore how factors like environment, lifestyle, and genes, can impact health. This may help develop new medical treatments that are unique to individuals, and enable a future of precision medicine for all of us.

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What is Precision Medicine?

The All of Us Research Program is part of the Precision Medicine Initiative. Precision medicine is health care that is based on you as an individual. It takes into account factors like where you live, what you do, and your family health history. Precision medicine’s goal is to be able to tell people the best ways to stay healthy. If someone does get sick, precision medicine may help health care teams find the treatment that will work best. This will help give health care providers the information they need to make tailored recommendations, relevant to people of different backgrounds, ages, or regions.

LEARN ABOUT THE COSTS OF IMPRECISION
What’s Possible with the All of Us Research Program?

Researchers can use this data to better understand health and disease.

This could:

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Identify risk factors for certain diseases.

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Join people with the right clinical studies.

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Figure out which treatments work for different types of people.

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Explore how technology can encourage people to take better care of their health.

 
Why Now?

The time is right because:

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We have greater understanding of human genes.

 
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More people are engaged in their health, and can track and share their data — like steps and sleep.

 
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We have technologies that can collect and crunch huge amounts of data.

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    The All of Us Research Program will change the way we do research. Participants will be partners in research, not subjects, and will have access to a wide range of study results. What we’re doing with the All of Us Research Program is intersecting with other fundamental changes in medicine and research to empower Americans to live healthier lives.

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    - Dr. Francis S. Collins

    Director, National Institutes of Health

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    There are significant parts of our society that don’t respond equally well to medications that are developed. I’d like to make sure that we equally benefit from the recent advances in biomedical and clinical research.

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    - Dr. Esteban G. Burchard

    Professor of Bioengineering & Therapeutic Sciences,

    University of California San Francisco

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    I had a series of gastrointestinal bleeds for which they could find absolutely no source. That put me in the position of most of Americans where 75% of the health care we receive is not evidence based. To have my doctors say to me, “We really just don’t know what’s going to work for you or why this is happening to you” was very disconcerting.

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    - Jamie Roberts, MPH, MA

    Senior Clinical Project Manager, CTTI

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VIEW / PRINT THE ALL OF US FACT SHEET

What Makes All of Us Unique?

Privacy First, Privacy Always

The All of Us Research Program is committed to protecting your privacy. We have partnered with leading experts in privacy, bioethics, civil liberties, and technology. Obvious identifiers will be removed from all research data. This means names, addresses, and other identifying information will be removed.

Partners, Not Subjects

The All of Us Research Program wants to make sure it does research with participants as partners in the process. This means that participants will be invited to give input about the program along the way and can see their own information collected by the research program.

A Resource For All of Us

The All of Us Research Program is not one single health study. It’s a database researchers can use to run thousands of health studies. This may lead to many different medical breakthroughs.

Open Research, Safe Research

The data we collect can be used by any approved researcher in the U.S. and around the world. There are strict rules they must follow to use the data. We want to inspire many types of researchers to use their creative thinking to find new discoveries.