All of Us California

If you join, you will be contributing to research that may improve health for everyone. Our goal is to understand why people get sick or stay healthy. Here are some examples of what researchers might be able to discover from their research:

• Better tests to see if people are sick or are at risk of getting sick
• Better mobile apps to encourage healthy habits
• Better medicine or information about how much of a medicine is right for each person

Also, you will be able to see your All of Us Research Program information, which might be interesting to you. You may also learn about your health. If you choose, you will be able to share your All of Us information with your health care provider.

Your privacy is very important, and we will take great care to protect it if you join. Here are a few of the steps we will take:

• Information we collect will be stored on protected computers. We will limit and keep track of who sees the information.
• We will remove your name and other direct identifiers (like your Social Security number) from your information and replace them with a code. There is a master list linking codes to names. This list is kept secure, and very few people have access to it.
• To work with your health information, researchers must promise not to try to find out who you are.
• We will tell you if there is a data breach.
• The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight legal demands (such as a court order) to give out information that could identify you.

Still, loss of privacy is a risk of taking part in the All of Us Research Program. Even without your name, there is a chance someone could figure out who you are. Your information could be misused. We believe the chance of this is very small, but it is not zero.

If you decide to join the All of Us Research Program, we will ask you to share different kinds of information. We will ask you basic information like your name and where you live. We will ask you questions about your health, family, home, and work. If you have an electronic health record, we may ask for access. We may ask you to go to a local clinic or drug store for a free appointment with us. At this appointment, we will collect basic physical measurements, including your height, weight, and hip and waist measurements, as well as your blood pressure and heart rate. We might ask you to give samples, like blood or urine, at the appointment.