The American Association on Health and Disability (AAHD) www.aahd.us is a national cross-disability nonprofit organization dedicated to ensuring health equity and inclusion for people with disabilities. In the past, people with disabilities were excluded or underrepresented in biomedical and health research. Now, AAHD is partnering with over 25 disability organizations in promoting the All of Us Research Program so that people with disabilities can contribute to research in a meaningful way. We are calling on the Disability Community to help make history and change the future of health.
The health data you share will be added to the All of Us database. Researchers can access this data to conduct studies. This could help researchers see how factors like different environment, lifestyle, and genes can impact health.
A network of national disability organizations announced their endorsement of the All of Us Research Program. Read the full statement to learn more about how All of Us is inclusive and welcoming of people with disabilities, and the promise of disability health research.
You can enroll online today. You do not need insurance to enroll.JOIN NOW
Find out more about participation.READ THE STEPS
Please contact us to learn more about participating in the program.
Your privacy is very important, and we will take great care to protect it if you join. Here are a few of the steps we will take:
Still, loss of privacy is a risk of taking part in the All of Us Research Program. Even without your name, there is a chance someone could figure out who you are. Your information could be misused. We believe the chance of this is very small, but it is not zero.
If you decide to join All of Us, we will ask you to share different kinds of information. We will ask you basic information like your name and where you live. We will ask you questions about your health, family, home, and work. If you have an electronic health record, we may ask for access. We may ask you to go to a local clinic or drug store for a free appointment with us. At this appointment we would measure your weight, height, hips, and waist, as well as your blood pressure and heart rate. We might ask you to give samples, like blood or urine, at the appointment. We also want to know if you will want information about your DNA.
If you join, you will be contributing to research that may improve health for everyone. Our goal is to understand why people get sick or stay healthy.
Also, you will be able to see your All of Us Research Program information, which might be interesting to you. You may also learn about your health. If you choose, you will be able to share your All of Us information with your health care provider.