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American Association on
Health and Disability

AAHD's Disability Consortium invites you to join All of Us

American Association on Health and Disability
AAHD

The American Association on Health and Disability has partnered with the All of Us Research Program

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The American Association on Health and Disability (AAHD) www.aahd.us is a national cross-disability nonprofit organization dedicated to ensuring health equity and inclusion for people with disabilities. In the past, people with disabilities were excluded or underrepresented in biomedical and health research. Now, AAHD is partnering with over 25 disability organizations in promoting the All of Us Research Program so that people with disabilities can contribute to research in a meaningful way. We are calling on the Disability Community to help make history and change the future of health.

The health data you share will be added to the All of Us database. Researchers can access this data to conduct studies. This could help researchers see how factors like different environment, lifestyle, and genes can impact health.

LEARN MORE ABOUT THE PROGRAM

No Research About Us Without Us

A network of national disability organizations announced their endorsement of the All of Us Research Program. Read the full statement to learn more about how All of Us is inclusive and welcoming of people with disabilities, and the promise of disability health research.


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How to Join

You can sign up using this website or call to make an appointment. If you do not finish signing up online, you can continue the process in-person; whichever is most convenient for you.

Get in Touch

Please contact us to learn more about participating in the program.

American Association on Health and Disability (844) 842-2855

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AAHD Video
Frequently Asked Questions
Why should I join the All of Us Research Program?

If you join, you will be contributing to research that may improve health for everyone and for future generations. Our goal is to understand how different factors together affect health and speed up research to develop new and tailored treatments. Here are some examples of what researchers might be able to discover from their research:

  • Better tests to see if people are sick or are at risk of getting sick.
  • Better mobile apps to encourage healthy habits.
  • Better information about which or how much of a medicine is right for each person.

Also, you will be able to see your All of Us information, which might be interesting to you. It may help you learn about your health. Adult participants may also learn about their DNA, if they choose to. Participants can share any information they receive from All of Us with their doctor, if they choose.

What will you ask me to do?

If you decide to join All of Us, we will ask you to share different kinds of information. We will ask you basic information like your name and where you live. We will ask you questions about your health, family, home, and work. If you have an electronic health record, we may ask for access. We may ask you to go to a local clinic or drug store for a free appointment with us. At this appointment we would measure your weight, height, hips, and waist, as well as your blood pressure and heart rate. We might ask you to give samples, like blood or urine, at the appointment. We also want to know if you will want information about your DNA.

What will you do to protect my privacy?

Your privacy is very important, and we will take great care to protect it if you join. Here are a few of the steps we will take:

  • Information we collect will be stored on protected computers. We will limit and keep track of who sees the information.
  • We will remove your name and other direct identifiers (like your Social Security number) from your information and replace them with a code. There is a master list linking codes to names. This list is kept secure, and very few people have access to it.
  • To work with your health information, researchers must promise not to try to find out who you are.
  • We will tell you if there is a data breach.
  • The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight legal demands (such as a court order) to give out information that could identify you.

Still, loss of privacy is a risk of taking part in the All of Us Research Program. Even without your name, there is a chance someone could figure out who you are. Your information could be misused. We believe the chance of this is very small, but it is not zero.

How can I join All of Us from home?

You can join All of Us and complete activities online. To join All of Us online, visit Participant.JoinAllofUs.org and create an account. In your account, you can consent to join the All of Us Research Program, agree to share your electronic health records, and answer health surveys.

If you complete these steps, we'll invite you to share a sample and tell us your height and weight. You can request an at-home saliva kit in your All of Us account. The kit is free and easy to use. When you’re done, it’s free to mail it back to us. Depending on your location, you may be able to donate blood and urine samples from home.

If you live near an All of Us partner site, you can also choose to schedule an in-person visit to join the program and complete activities.

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Our FAQ library has the answers to over 60 common questions.

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