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Our website uses cookies, as almost all websites do, to help provide you with the best experience we can. Cookies are small text files that are placed on your computer or mobile phone when you browse websites.

Cookies help us:

  • Make our website work as you’d expect.
  • Provide a message we believe is more relevant to you.

We do not use cookies to:

  • Collect any personally identifiable information.
  • Collect any sensitive information.
  • Pass personally identifiable data to third parties.

You can learn more about all the cookies and the information we collect by reading our Privacy Policy. If you don’t want to use cookies you can either exit the website or change your browser settings.

American Association on
Health and Disability

American Association on Health and Disability
AAHD

The American Association on Health and Disability has partnered with the All of Us Research Program

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The American Association on Health and Disability (AAHD) www.aahd.us is a national cross-disability nonprofit organization dedicated to ensuring health equity and inclusion for people with disabilities. In the past, people with disabilities were excluded or underrepresented in biomedical and health research. Now, AAHD is partnering with over 25 disability organizations in promoting the All of Us Research Program so that people with disabilities can contribute to research in a meaningful way. We are calling on the Disability Community to help make history and change the future of health.

The health data you share will be added to the All of Us database. Researchers can access this data to conduct studies. This could help researchers see how factors like different environment, lifestyle, and genes can impact health.

LEARN MORE ABOUT THE PROGRAM

How to Join

You can sign up using this website or call to make an appointment. If you do not finish signing up online, you can continue the process in-person; whichever is most convenient for you.

Get in Touch

Please contact us to learn more about participating in the program.

American Association on Health and Disability (301) 545-6140

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Frequently Asked Questions
What will you do to protect my privacy?

Your privacy is very important, and we will take great care to protect it if you join. Here are a few of the steps we will take:

  • Information we collect will be stored on protected computers. We will limit and keep track of who sees the information.
  • We will remove your name and other direct identifiers (like your Social Security number) from your information and replace them with a code. There is a master list linking codes to names. This list is kept secure, and very few people have access to it.
  • To work with your health information, researchers must promise not to try to find out who you are.
  • We will tell you if there is a data breach.
  • The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight legal demands (such as a court order) to give out information that could identify you.

Still, loss of privacy is a risk of taking part in the All of Us Research Program. Even without your name, there is a chance someone could figure out who you are. Your information could be misused. We believe the chance of this is very small, but it is not zero.

What will you ask me to do?

If you decide to join All of Us, we will ask you to share different kinds of information. We will ask you basic information like your name and where you live. We will ask you questions about your health, family, home, and work. If you have an electronic health record, we may ask for access. We may ask you to go to a local clinic or drug store for a free appointment with us. At this appointment we would measure your weight, height, hips, and waist, as well as your blood pressure and heart rate. We might ask you to give samples, like blood or urine, at the appointment. We also want to know if you will want information about your DNA.

Why should I join the All of Us Research Program?

If you join, you will be contributing to research that may improve health for everyone. Our goal is to understand why people get sick or stay healthy.

Also, you will be able to see your All of Us Research Program information, which might be interesting to you. You may also learn about your health. If you choose, you will be able to share your All of Us information with your health care provider.

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Our FAQ library has the answers to over 60 common questions.

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